Deuteronomy 4:9-10

12 Apr 2016

Today, my devotional time was on Deuteronomy 4. (I'm going through Numbers and Deuteronomy right now)  Verses 9 and 10 say, "Only be careful, and watch yourselves closely so that you do not forget the things your eyes have seen or let them slip from your heart as long as you live.  Teach them to your children and to their children after them."  I think one of the most encouraging things that people have written me that they are praying for is for our kids to not lose their faith through this time.  This isn't an easy thing to explain to the kids.  Yes, I know God has a reason, but I don't know what it is yet, and can't tell my kids with confidence what it is.  Sure, someone might become a Christian because of this, or someone else might avoid some future suffering that they don't even know looms ahead, but I don't know what it is.  So please keep praying that my kids and I don't let the things we've seen God do before this trial 'slip from our hearts as long as we live.'

Amy's had a rough day.  She is getting dehydrated and not eating well.  She's losing her ability to swallow and can no longer see, which makes eating that much more difficult.  When we try to sit her up she often seizes or passes out.  'Why don't you put in an IV?' some of you might be asking.  Before Amy was delirious she clearly stated she'd want an IV if she was nauseated and couldn't keep from vomiting, but not if she was no longer lucid or comatose.  Just because we can prolong her life doesn't mean that we should.   What good would putting in an IV bring?  But when we ask questions like that, we have to ask ourselves, 'What good does hovering over her throughout the day encouraging water, mangos, cereal, bread with honey, and apple pie bring?'  Somehow that seems right, so we continue to encourage nibbles of those things, though we recognize that we are really doing those things for ourselves not for her.

Difficulty standing up

11 Apr 2016

It is getting hard for Amy to stand at all, even for just a few seconds at a time, which is complicating taking care of her.  You can imagine the difficulties that causes.  She's not eating much and her lucid moments are pretty uncommon.  Sarah came to the conclusion that she doesn't want to be a hospice nurse and announced it publicly.  On the positive side of things, I had the best night's sleep in a week, on a mattress on the floor next to our bed.  I realized that I need to put an extra blanket or at least socks on her at night as her feet were pretty cool by morning without her warm husband next to her.

Sleeping on the Floor

10 Apr 2016

Amy hasn't been able to eat at the dinner table for a couple of days, but since she was doing a bit better yesterday afternoon, we decided to have her try sitting at the table with the family again.  It didn't work:  She kept reaching for things (she can't see hardly anything), dragging her hands through her food and would have knocked many things on the floor if it were not for Mia's cat-like reflexes.  So it looks like were done with sitting at the table unless she rebounds markedly.

Last night she was hallucinating and yelling and hitting me again.  When I say 'hitting me', she's not clenching a fist and punching me, but her arms flail a lot during the night and she smacks me in the face over and over.  At 1 am I finally gave up on hoping that she was almost asleep and would stop soon and I moved to a camping mattress on the floor.  She continued to talk and yell, but I could sleep a bit better through her yelling than getting smacked in the head.

Better night

08 Apr 2016

I'm glad to report that last night was markedly better than the previous.  Amy slept, or at least was quiet, for most of the night.  She woke up at 3 am and said, "I want granola with yogurt!"  Yes, my home-made granola is that good.  You want to get up at 3 am to eat the stuff!  I trundled downstairs and prepared a bowl and brought it upstairs half expecting her to say, "I don't want granola now," but she ate the whole bowl full and then went back to sleep!

The kids are home from school because their school is a voting location for Sunday's first round of the presidential election here in Peru.  They are in our bedroom playing a game on the floor next to their mom.

Horrible Night

07 Apr 2016

Last night Amy hallucinated and talked loudly almost the entire night.  She also kicked and pinched and hit me several times.   I only got an hour's sleep.  Several times I pled with her to be quiet, hoping that a rational part of her brain would be able to take over, but that never happened.  The good news is that she didn't seem to be in much pain and seems to not be in much pain today.

Good news and bad news

06 Apr 2016

The Good News first:

Amy's maintained her weight for about a week now.  

She's been laughing again.  She has rarely laughed and never cried over the last 2 months.  She still will say funny things (I mean on purpose, not the hallucinations, which are funny too).  She's been laughing frequently over the last day or two.  I think it's always nicer to be around people who laugh.

The Bad News:

She's having more difficulty swallowing and is getting hard to feed during meal times because she reaches for random things (including the food on Mia's plate) and drags her hands through her food.  She'll sometimes chew a mouthful 30 times.  Or 100.

She was verbally unresponsive for much of the last two days.  She couldn't come to supper last night or breakfast this morning because she was too 'out of it'.

 

Apple Pie

01 Apr 2016

Amy's lost a lot of weight over the last three weeks because she's had no appetite, or worse, nausea and vomiting.  She's been feeling better recently, so we've been trying hard to get her to eat more.  She's really got a sweet tooth and yesterday ate a lot of Swedish Cheesecake (Östkaka.  Doesn't translate well into Spanish) and today for dessert at lunch ate two pieces of apple pie, slathered with whipped cream.  I've learned that if I get a snack in the morning and sit by her to eat it and offer her some, she'll pretty much eat all of it.  She will almost always eat mango, and unbelieveably (to a non-coffee-drinker), will drink a full cup of coffee with milk and sugar.  

Can I laugh?

31 Mar 2016

As I've mentioned, Amy says a lot of nonsense right now.  She's pretty convinced that we have two more kids, Ellie and Luís (and sometimes Lisa and others).  At first when she spoke like this we didn't know how to react.  Can one laugh at someone whose brilliant mind is now splintered and in disarray?  Interestingly enough, the people who knew Amy well have all said, "Amy would have wanted you to laugh."  So we talked about it as a family and decided, "Go ahead and laugh.  She would have wanted us to laugh."  I think this kind of freaked out a visitor we had yesterday, as if Amy's children were being disrespectful to her (I actually wasn't there but the kids told me later) but it aligns with what we think her wishes would be.  The kids wisely came up with the plan to be less cheeky when guests are present.

Last night Amy slept pretty well, and she's eaten well today, though I've noticed that she is having more difficulty swallowing.  She has lost 10 kg (22 pounds) in the last 20 days, so we are trying hard to get to her eat more, especially now while she doesn't have so much headache and nausea as before.  We've stopped asking if she wants peanut butter on her apples.  We just add it on to boost the calories.

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